Monday, April 23, 2012

Improving disability services Vineland Daily Journal, April 16, 2012—By: Jennifer Velez and Allison Blake



Gov. Chris Christie has long spoken of the state’s moral obligation to recognize the individuality and unique needs of every New Jerseyan with a developmental disability. This year’s budget reaffirms the Administration’s commitment to a fundamental rethinking of how people with developmental disabilities receive support and services.

New Jersey has a system of care in place for children and adults with autism and other developmental disabilities, but it can be confusing, difficult to navigate and frustrating for families just learning of a diagnosis. These critical services — including early intervention, special education, behavioral health support, disability services, employment assistance and housing options — span six different cabinet-level agencies of state government.

While independently and collaboratively, the departments strive to meet the needs of people with developmental disabilities and their families, there is an opportunity to make state government more responsive and accessible to New Jerseyans who need these services. Gov. Christie and his administration are seizing this opportunity.

To ensure there is an integrated continuum of services responsive to the whole child and the whole family, Gov. Christie announced a common sense restructuring during his fiscal year 2013 budget address that moves all services for children with developmental disabilities from the Department of Human Services to the Department of Children and Families, beginning in July.

This move and creation of the Division of Child Integrated System of Care Services within DCF is one that stakeholders have applauded and one that, we agree, will benefit families seeking a single point of entry.

DCF is family centered and has the expertise and infrastructure in place to serve children with developmental disabilities. This restructuring ends the historic fragmentation that now exists – particularly for families whose children need services and supports from both departments. With its wide-ranging network of community services, DCF is positioned to provide a holistic approach to serving children with autism and other developmental disabilities. DCF and DHS will ensure a seamless transition to provide needed services and supports as part of a transition plan for older youth moving into the adult system

Since fiscal year 2011, aging out services have been fully funded. This means that young adults with developmental disabilities who are no longer eligible for the special education entitlement and who are not involved in a work activity participate in day programs.

Also, there is an array of in-home services and supports that allow families to care for an adult child with autism or other developmental disability, reducing the need for institutionalization or out-of-home placement.

Further, DHS continues to advance efforts to move individuals residing in the state’s developmental centers to the community. The governor’s FY’13 budget provides nearly $40 million to ensure community living opportunities.

In addition, we are working with the federal Centers for Medicare and Medicaid Services on New Jersey’s Comprehensive Medicaid Waiver application. Our goal is to increase community-based services for children and adults with developmental disabilities. Integral to this is the Supports Program, which will promote in-home, self-directed services for adults with autism and other developmental disabilities; a program to provide intensive in-home assistance for children with the dual diagnosis of mental illness and autism or other developmental disabilities, and; evidence-based Applied Behavior Analysis therapies for Medicaid-covered children up to age 12, who are diagnosed with a pervasive developmental disorder, which includes autism.

The CDC’s recent report on the prevalence of autism makes even more important Gov. Christie’s commitment to the vital work under way in New Jersey to reshape and enhance our service system.

The ideas, assistance and support that we have received from families, advocates and professionals across our state have played an essential role in creating a continuum of care that will continue to evolve and be responsive to the complex needs of children and adults with autism and other developmental disabilities